Vol. 4 No. 2 (2024)
Viewpoint

Working Together for Better Health: A United Effort to Support the National Strategy for Drugs for Rare Diseases in Canada

decorative image of the issue cover

Published February 28, 2024

Key Messages

  • February 29 is Rare Disease Day — an occasion that inspires action and solidarity to address the challenges and opportunities of rare diseases.
  • To address the issues faced by patients with rare diseases, in March 2023, the Government of Canada announced a national strategy for drugs for rare diseases, with an investment of up to $1.5 billion over 3 years.
  • The strategy aims to increase the accessibility and affordability of drugs for rare diseases for patients across Canada.
  • CADTH-led initiatives are primarily related to improving the collection, use, and quality of evidence to inform and support decision-making.